Micro-managing our kids

I was having a chuckle with my friend the other day about the fact her husband has this need to micro-manage every aspect of her son's life, instructing every little move, don't do that, do it like this, stop that now...

The conversation kind of hit home as actually I think that I could be guilty of exactly the same thing but in a very different way. Every single decision we make because of our daughter's difficulties have to have, it seems, a hundred different thought processes, even a decision like dinner can be complicated. Last night the kids were having dinner at their grandparents which should have been simple for us but the choice for us was do we quickly make something for ourselves now whilst they are out or eat after they have gone to bed. The preferred choice was after they had gone to bed as neither of us were particularly hungry at that moment but then we had to have the separate thought process of 'well if we wait till they have gone to bed what happens if Girl decides to have one of her meltdowns, it could be after 9pm until we eat...'  which was very possible after an afternoon at the grandparents and a pattern of meltdowns throughout the week. We decided to risk it and wait and prepared a dinner that could be cooked very quickly but this sort of micro-management is mentally exhausting, even trying to decide on a dinner we both fancied that could be coked quickly was a major conversation. As it happened Girl went to bed quietly so we enjoyed our dinner of steak and home-made chunky chips minus the anxiety.

Even the everyday language we use has to be carefully thought out which is very difficult,  the words said in the heat of the moment 'I'm not listening...' can tip Girl over the edge. My husband uttered those fateful words last week and the minute they left his mouth I cringed then quickly ran upstairs and found something to do, out of the way, if he's daft enough to say it, he can deal with it! He was actually just trying to point out that we are fed up of the whinging and whining but Girl can see those words as personal, that we don't want to hear her at all, that we don't love her. He knows we have to request that she try asking in a nice, appropriate way but well neither of us are perfect! I did go back down after five minutes to offer support but actually running away was the best thing at this time, it gave me chance to quickly and calmly think of a diversion or solution.

When You Hit Rock Bottom The Only Way Is Up

It' that time when the dog is barking for a walk, the two year old needs his nappy changing, the tea is cooking, you realise you've left a vital ingredient from your shopping list, you're all tired from a weekend away, the phone is ringing and right at that crucial moment when you can't take any more stress your attachment disordered child decides it's the appropriate time to make her demands known and if they are not met or the desired level of attention achieved within her specific timescale (NOW MOMMY) the two year old on his ride-on gets forcefully slammed into a wall and then trampled on. Now tell me to keep my emotions in check and not to yell, I'm sorry, I hate myself for it but it isn't going to happen and here I am a few hours later beating myself up for not behaving like a robot.

I have discovered that the perfect adoptive parent does not exist, I talk to other parents and they tell me not to worry they have all slipped up at some point, all yelled and shouted, nobody is perfect, even our PASW tells us this. Yet I consistently worry about slipping up, for not being consistent, for showing my emotions at an inappropriate time, for shouting or yelling. The infuriating thing is, I would probably say that nine times out of ten nowadays we do get it right, we do effectively manage the behaviours and yet instead of celebrating that achievement I worry and stress about the one time I get it wrong.  

I know how crucial to an attachment disordered child consistency is, safety, security, boundaries but juggling such intense need and regimentation along with regular family life is stressful to say the least and the more stressful it becomes the more chaotic life becomes, even remembering to make sure you have your keys when you go out can become one thought too many. It seems every little detail of life has to be micro-managed and the regular everyday details can all become white noise.

So here I am today feeling like I have hit rock bottom, I have snapped at my child who in return decided to rip the beautiful mural from her wall. The mural I cannot afford to replace. My stress levels after a weekend away, followed by a meltdown, followed by a day out with friends, followed by another meltdown is at such a peak I can barely speak coherently, I get my words muddled up, I forget keys, forget to lock doors, lose my husbands debit card in the street, the list is endless of how ditsy I have become. 

However when you are at rock bottom there is no other place to go but up. With some support from good friends and a good strategy shared with the husband eventually Girl is in bed and all is at peace for another day so hooray to us.

If I could offer any advice to other adopters it would be this; get support and friendship.  Make friends with other adopters, attend post adoption support group's, toddler groups, trip's out and parties, however you do it doesn't matter, just know that there are other people.

Decide a strategy and stick to it, if you lose control, take a step back to breathe, if possible swap roles for a while.

Don't lose hope.

Signals

We have learnt to expect (and could probably guarantee if asked) that if we do anything too exciting with our daughter that the event will be sabotaged by very difficult behaviour either during or shortly after. By very difficult I do mean violent, uncontrollable aggressive behaviour. I am not talking about a little bit naughty because I am sure all kids can be a bit difficult when over-stimulated but Girl has no control or self-regulation, she has the emotional capacity of a two year old.

Girl enjoys but at the same time cannot cope with parties and theme parks. Her brain is wired to run on a high level of alert at all times and things such as large crowds, high noise levels, too much sugar can over-stimulate and send her into meltdown but like all kids she wants to do these things and who are we to deny her these childhood thrills? So we mentally prepare ourselves and run with it. Hot chocolates, ice-creams, sweets, a trip to the gift shop on the way home. Is she spoiled? I don't think so or I hope not, I like to think we are just normal parents, we fought hard for our girl and by golly (did I just say by-golly?) we dreamt of being able to do these things as a family and give our girl a happy fun-filled childhood and she truly does enjoy them.

This weekend we celebrated both my husband's and son's birthday's with a two-day trip to Legoland with a large group of close family. I have to say that we did have a lovely time and nothing that happened afterwards can take away from that time, it is still a good memory but the behaviour from Girl started to very, very slowly slide by the the second day. Not terrible or partcularly noticeable behaviour by anybodies standards including my own, just warning signals, a refusal to comply, cheekiness, a distorted voice here and there, demanding and petulant behaviour. Some of this sounds pretty normal and appropriate but with Girl I know that when we see all of the behaviours on the list - particularly 'the other voice' - that they are signals that her brain is starting to melt as generally she is a very nice little girl that displays age appropriate behaviours, certainly no angel but manageable most of the time.

The biggest warning signal for us is refusal to comply, this is because Girl is needing to feel some control over her life. The way we manage this is to ask of her as little as possible, keep instructions to a minimum, help with everyday tasks. She may refuse to brush her teeth, put her coat on, get dressed and so we have to try to coax, negotiate, assist as much as we can, which admittedly is not at all easy with a two year old that also has needs.

It's very easy (even for us as her parents) to forget that Girl is not being difficult for the sake of being difficult, that she is sending us signals. After all, she looks and sounds like any other child of her own age. You wouldn't be able to pick her out in a line-up and say 'yes that girl has a brain disorder because her brain was traumatised as a baby'.

However, knowing that it is going to happen does not make the behaviour any easier to deal with and no matter how much we brace the shock of a violent meltdown can actually feel like a body blow and this morning the meltdown that we were expecting arrived after a total refusal to get dressed.

I live in hope that one day we will do something really exciting for our daughter and she accept it and enjoy it with no anxiety. We all need to have some hope.

The beginning

Where do I start? At the beginning I suppose. Just over three years ago we became the proud adoptive parents of a little girl. A little girl who was two weeks away from her second birthday so you can imagine what a massive impact the first little fox cub made on our lives. For reasons of protecting her identity I will refer to her as Girl.

Girl was removed from her natural parents at birth and placed with foster carers who clearly did care for her in some respects but with family and personal issues of their own they failed in their care of her. Girl's adoption was delayed by almost a year due to concerns with her development, mostly we believe now caused by lack of stimulation and interaction and a certain amount of neglect of care. After many tests and consultations with experts we took Girl on knowing that she had an uncertain future, that she might catch up with her development or she may need to attend special school, nobody could say for sure but when we saw that first photo of her we could see a sparkle in her eyes and we fought tooth and nail to go ahead with the adoption. Three years on and outwardly Girl displays as being quite 'normal' whatever that means, inwardly though that first two years of care has made quite an impact, both emotionally and developmentally and we are currently working with post adoption support workers to help us cope with her issues.

Being suckers for punishment, last year we adopted a little boy, our second fox cub (I shall call him Boy) and he is now also weeks away from his second birthday so you can imagine the chaos in our house at times.

With this blog I hope to offer an insight into what it is like to live with a child with an attachment disorder, adoption issues and good old fashioned parenthood. I don't pretend to be any kind of expert on any of the issues, I talk regularly with other adopters, I have read a lot of books (which I will tell you about), picked up a lot of tips, tried a lot of things (some have worked some haven't) and if anything I can share can help you then that's good enough for me.